Where is the time going?

I was getting ready to go to bed after another whirl wind (ok, you know I am lying) weekend and I realize, it is actually Monday night.  I totally lost track of time.  I keep thinking that I am keep up with my blog and then I see it has been another 4 days since I made a post.  Right now, All I can ask is that you please keep checking back and please forgive me.  My pain levels are just out of control right now, and due to my inability to take pain meds, I am having a hard time getting the pain under control.  I am hoping it will get better soon, if we finally get the rain that they have been calling for for the last week or so.  It has been an incredibly long day so I am going to try and head to bed, and hope my body and brain decide to cooperate with me.  Ten on Tuesday tomorrow! Til then, Gentle Hugs.

Rain Dance!

I am in a severe struggle right now.  The struggle between trying to keep my sense of humor and curling in a ball and crying from the pain.  I just finished a run of steroids to help get the severe headaches I have been dealing with under control.  Well, it did not really work, I am still having the headache.  Now add in, some severe and overbearing pain in the rest of my body, and you will have how my week has been.  I feel like I have been neglecting almost everything.  But in all actuality, no matter what I do, it hurts.  Sitting, standing, laying, typing, watching tv, cooking, walking, all of it results in some sort of pain, or is painful in some way.  So I have avoided adding anything to my blog, typing is painful, but also the screen on the computer is to bright, adding to the headache.  Watching tv is ok for a few minutes but then it starts to hurt my eyes, then the volume begins to annoy me and all adds to the headache.  Both of these require you to either sit or lay.  I can do both for just  a few minutes before the pain, more like severe burning/stabbing pain begins in my hip area. I also have the same burning pain in my arms and legs all the time.  This pain I am feeling is normal for me, but nothing this severe.  I deal with all of this on a regular basis, to a lesser extent, but for some reason, either right now I am just much more susceptible to the pain, or it is just so much worse.  I do know, that when there is a change in the barometric pressure or weather patterns my pain gets 300 times worse.  The weathermen, which we all know we just can not trust, have  told us that it should storm or rain every day this week.  So far, no rain.  I am thinking maybe this is the reason why my pain levels are so out of whack.  The only problem I see, is beyond the fact that it really needs to rain, it has been really nice outside.  Of course, I know you are asking, how would you know?  Well, it would be from my wonderful family telling me how nice it is outside, while I am barely able to walk my butt to the bathroom!  Sometimes they don't really think.  So it is so awesome that is is beautiful out, and it would be awesome time to be over at the beach, not to hot, but no, I am stuck, getting my suntan from the inside since I am on fire from inside.  I think mother nature is now screwing with me.  Is it because I asked her to cool it down a bit and it is summer when it is supposed to be hot, or is it just my imagination?   I am at the point where cutting off all my appendages including my head, would possibly lower my pain levels, but so would, hopefully an amazingly strong thunderstorm.  Which would be easier, and probably a bit cleaner for me, the thunderstorm.  So the only question left is who is available to perform the Rain Dance, because I am not sure I can do it myself, but I would be happy to give it a try.  I am sure someone would at least get a good laugh out of it in the end!

Just Pain a 9 out of 10

It has been a really rough week.  I finally thought the new medicine was helping.  I was not getting sick, I could stand on my own, without feeling like a weeble wobble, and I could actually get in the car and ride without having to pull over every 10 minutes or hold a bag or bucket in front of me because of motion sickness.  Well, apparently, it is not doing enough.  The first 3 or 4 days, it made me incredibly sleepy.  This, for me, was a major  plus.  Since I was a severe insomniac and was barely sleeping, the extra sleep was a blessing.  The only problem, it was lingering.  I was dragging all day.  I slept for numerous hours, but did not get restorative rest,  then all day, I felt sleepy.  So now it has been 10 days, still sleepy all the time, but the actual sleep assistance is gone.  I just feel groggy all the time.  I also have major pain.  As anyone with fibromyalgia knows, you can have pain in varying degrees, in varying areas, t varying times, at any given moment.  Well, let me tell you, the pain I have felt over the last 4 or 5 days would put a normal person in the fetal position, screaming for death.  My arms are constantly on fire, and at times I have pins and needles in them and then occasionally it feels like someone is stabbing me in the hand and forearm.  My hips are in so achy, and sore I look like someone with a double hip replacement when I try and walk.  My calves and ankles are like my arms.  Only difference is the stabbing in my legs is more profound, almost non stop and at night, it is horrible.  I am having a difficult time being mobile and have been in my bed or bedroom almost all week.  Over doing things, does wear you out.  When you have decent meds, you won't end up in bed for weeks.  But when the meds help put you in bed, it totally sucks.  When you go to the doctors, and they ask you, on a scale of 1-10 what is your pain level, how do you answer?  In all honesty, my pain level for a normal person would be a 100.  For me this week it is definitely pushing a 9.  My doctor said she sees a 10 as being in so much pain you are crying and curled up, well honestly if I cry and curl up, it just makes my pain worse, adds a bigger headache and curling up for me, well sometimes that is totally not an option.  So, I am trying my best to keep going, but seriously, how much pain can one person handle?  I can not take any pain meds, I have a horrible allergic reaction to them.  So, I will be talking to the doctor on Tuesday, there has got to be a medicine out there to help lower the pain levels.  I don't think a 9 out of 10 is fair to any living creature.  I would be happy with a 5.  I know they can't fix it, but what is out there to help?

How are your pain levels?
What meds do you take?
What alternative medicine practices help you?