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Showing posts with label fibro-fog. Show all posts
Showing posts with label fibro-fog. Show all posts

Monday, June 27, 2011

Wow!!!!

So, I am in shock and overly excited and then I sure feel dumb and frustrated with myself.  All of this in the matter of about 5 minutes.  So are you wondering why yet?  Well, I was so excited and shocked to come on my blog after a week of craziness and not being able to get here to see so many awesome comments from people.  Then, I realize, I totally missed the awesome chance I had with #commenthour.  How the heck could I forget I signed up for that and had a chance to be featured?  Well, I know how I could forget, It is called fibro-fog.  It is when this awesome everyday unrelenting condition of fibromyalgia starts to effect your brain function.  The once normal person, the one that could answer the phone, listen to the radio, run something through a computer program and answer a coworker all at the same time while remembering everything she was supposed to be doing, can not remember what she had for breakfast 3 hours ago.  How was I supposed to remember that I signed up to be part of #commenthour when I did it 3 days before hand.  (I only know that because I looked it up, lol)  I have to tell you, the fibrofog is probably the worst thing for me.  I am a control freak.  I like things to be on time and in order.  I was always the one to handle the finances because I could tell you to the penny how much each bill was, the date it was due, which paycheck the money to pay it would come out of, and so on.  I had recipes memorized, I worked at a place where I had to memorize fire company unit designaters,  EMS designators, geography, ten codes, phonetic alphabet and operating proceduress.  Now, it have a hard time remembering when to take my medicine or that I have a doctors appointment.  It is a combination of things.  First of all in general, you become a bit fuzzy.  When you are in constant pain, it is hard to concentrate.  So it is just a basic thing that you don't always function mentally and cognitively as well as before.  Then, there are all the medicines.  Each one of the medicines I take for my fibromyalgia and co-morbid diseases, has a warning with it, either, causes drowsiness or dizziness.  Ok, so if you are totally doped up all the time, of course you are not going to function in the best capacity.  But if you have any idea of how the pain is, with the medicine, you may actually have a somewhat manageable pain level, without the medicine, you would be so out of your mind, you could not be able to assist in any fashion.   It is basically 6 of one and 1/2 dozen of the other.  High pain levels and incapacitated from the pain, or meds that help to regulate the pain, but make you tired or dizzy, or nauseated.  I will tell you, there are times when I have to not take doses of my medicines so I can function enough to get stuff done.  If we have an appointment during the day, morning medicines are out.  If I am going to be driving to dinner, early evening medicines are not taken.  Sometimes, you have to decide the pain is worth the outcome of what is going to happen.  So needless to say.  I am so thankful to #commenthour for featuring my blog.  I am also very happy that you so enjoyed the recipes and information that you read on my page.  I truly hope to be able to be at #commenthour this week.  I would love to chat with you and answer questions.  If anyone thinks about it, maybe you can do something for the forgetful old lady I have become and add a comment to my page to remind me.  Thank you all for reading my blog.  Thank you for your awesome comments.  Please check back, I will be adding my 10 on Tuesday shortly and I am hoping to figure out the subject tomorrow.  Again, Thank you very much.

Monday, June 6, 2011

Figure it out?

I am at the point of complete confusion.  I think I finally have things figured out, start to get my finances in order, the I realize, I forgot something.  Ok, I have to tell you, the absolute worst part of this whole Fibromyalgia thing is the fibro-fog.  The fact that my once agile brain, is slow and muddled, even forgetful.  I was a person who was capable of doing multiple things at once, and actually doing them right.  I was a police,fire and EMS dispatcher.  I had to be able to talk on the phone, listen to the phone, type, talk and answer my radio and listen to my fellow dispatchers as well as complete tasks all at once.  Now, if I am doing something on the computer, I don't really do well if someone talks to me, and mostly miss the conversation or question they ask.  I can not talk on the phone and be on the computer at the same time and be as complete as I used to.  I just recently almost sent us into a major overdraft situation with our bank because I totally forgot the one bill we have auto deducted from our account.  The one that has been deducted the same time each month for the last 8 months.  How did I forget that?  Well I guess it would be the same way as I forget simple words I need to finish a sentence, a doctors appointment that I remind my son of just 4 hours and then totally forget and have to rush around to get to,    and even recipes that I have used for years.  Thank goodness my husband remembered and my family was able to cover me so I was not owing the bank my life savings and my first born in fees.  We all know how much this "disease" sucks, but losing your mind makes this even worse.  I am a person that has always been on top of everything, now I barely can remember my name, or at least that is how I feel.  Does anyone else feel that way?  How do you figure it out?  I will tell you what I have started doing.  I am the queen of notes.  It may be annoying, but learn to keep paper and pen or pencil with you at all times.  A calender will become your best friend as will the calender on your cell phone.  I love my phone, it beeps to remind me of every crazy appointment I or anyone in my family has, as well as any other important thing such as birthday's.  I also use my google calender to put appointments in so that it actually sends me an email to remind me of something that is going on.   I am thankful for my calenders and notebook.  I also have a thing through my bank that sends me notices about 1 week in advance when my bills need paid, I did not have my auto deducted bill on there, but I do now.   I truly believe I am quite a burden on my poor husband.  He works a full time job as a manager for a convenience store, so he basically works 24/7  then he deals with me and all my crap, helps do anything and everything when I am not able to, and now he even has to deal with covering my screw ups because my brain stops working.  If I can try and keep things on track by making a thousand notes then I will continue to do it.  If I get carpal tunnel from the notes, oh well, what is a little more pain, lol.    Can I figure it out and make it work, I sure hope so.  Will I give up, no way in hell.  I will not let this win.  I may have to stop in the middle of a conversation and  think of a word or make a hand gesture to help me finish a sentence.  I  may have to walk with a cane, sit in a wheel chair or not go somewhere, to be able to do something else.  I may not be able to multi-task like I used to and yes, my memory is definitely not as good as it was, but I will not give up living within my ability and pushing myself on occasion, to have a good and fulfilling life.  If I figure it out, I will tell you and ask for you to tell me and others if you figure it out!