I am once again running to the end of the day. It is 11:32 pm and I am honestly feeling like crap and have no idea what I want to do for my ten on Tuesday, but I hate not getting it done. So as I sit here and type and ramble to try and figure out what to do, I ask myself what things can I write about? What lists or what groupings of things will make sense? Honestly, my brain is not functioning and my head is hurting so bad, I can't even begin to get my head around anything. But it hits me..... It is back to school time, and what makes this time of year so hard on people with chronic pain diseases, well let me tell you-----
1. Clothes Shopping- This is a disaster. I am not sure how it is for you, but I have a teenage boy, who hates to shop, especially with mom. So the stress of fighting to get him out, then finding stuff he likes, I can afford, and then getting it, well lets just say, by the time I am done, I am beyond exhausted
2. Sports- Yes, it is that time again, the crazy school sports schedules. Sports camp starts before school even begins. Football camp starts at 7 am, and of course we have to provide our own transportation, and my husband of course has to be at work at 6 am. Ya, so the insomnia that keeps me up til 4 or 5 am and then I have to be out by 6:20 or 6:30 to make sure my son arrives on time, then of course the pick up which I am still not sure what time that is. Ya, this should be good.
3. Money- Finding the money, money for the clothes shopping, the sports equipment, the physicals, the school supplies and god knows what ever else they decide we need to pay for now. Working on a close budget, that is one of the hardest and most stressful things for me. Added stress, added pain as we all know. Worse of all, It may come down to choosing between money for sports and money for my own meds, and of course the sports will be priority. My kids will not go without!
4. The List- We all know the list..... the list sent home from the school, if you are lucky, mailed prior to the beginning of school, but often sent home the first day of school, with all the supplies needed or requested by the teachers for the child or children to have for each class. Always specific items and nothing else will do. And of course then you have to hope and pray you get to it before the store is sold out.
5.The Routine- Getting everyone back onto a regular schedule, and out of the relaxation of summer. It will no longer be the days of when it happens it happens. Bedtime is bedtime, dinnertime is dinnertime, homework must be done, showers need done, you must wake up with the alarm and catch the school bus or walk to school and be there on time. Summer is when you can sleep til you wake, slowly fall asleep when you are tired, eat when it is done. Those days will have to wait again until next year, rigid time constraints will take their place. So now, when you feel like crap, you can't say, it can wait a few minutes, because it can not, there is a schedule that needs followed.
6. The Struggle- The struggle to shove all the last minute fun stuff into the few fading weeks of summer. The days at the park, pool or beach. The last minute vacation to see family or friends. The water park, the mini golf tournament you promised, the movies, or what ever fun family thing you always did that you have not yet completed for this summer.
7. The Closet- Yes, we all know it has to be done, and we all dread it. But seriously, if you don't clean out the closet, you won't be able to put the new clothes in, nor will you know what you have that still fits. The summer stuff that can still be worn. Of course, this will be a battle, and entering a child's room, especially a teen's room, could be in it's own right dangerous to your health, (lol), but it should be done, it will save your sanity, and hopefully a few dollar in the end.
8. The Company- I have to say back to school it bittersweet for me. I believe it is the same for many parents. Being an at home mom, especially one with limited abilities due to chronic illness, having someone home with me all the time is pretty nice. Yes, he is a 15 year old boy, he is often hiding in his teen cave aka bedroom, but if I need him or he is bored, we hang out. We do stuff together when I can. When he is back at school, I am all alone in my house. If I am in a totally incapacitated state, which happens often, I am stuck in my room with no human contact and I know he won't be popping in. I love that he is back with his friends, he is active again, but I will miss the company.
9. Early Mornings- I don't know about others, but I am horrible in the morning. Since I sleep like crap most nights don't fall asleep until the wee early hours of the morning, waking up at them is horrendous. Also, on the amount of meds I take, once I sleep, waking up, is horrible. I feel really drugged and not safe waking up and dealing with mornings. I hate that my son has to get up on his own and get ready, I know he is 15, I understand he is old enough and needs to be responsible, but he is my baby, and it eats at me. How do mom's with little one's deal with this?
10. The Yes I will Syndrome- and so it begins. The torture of the fact that I love to help, even when my body says there is no way in hell that I can. Yes I will help with the fundraiser, yes I will help at the football concession stand, yes I will make something for the bake sale. See, I have never ever been able to say no. I hate doing it. I know, physically I can not do the stuff I say I will. 5 years ago, I could, of course I was slowing down even then. 10 years ago, I was running the PTO, the soccer club, a basketball mom, helping with multiple fire company fundraisers, and bake sales, and I was also on the March for Dimes Committee for the Walk for Babies for the city I lived in and handled the food at the end of the walk for multiple years for over 1000 walkers. Can I do that now. Only if I wanted to be in bed for weeks afterward. See, I have to learn how to say no, but how. I want to help, and I want to be able to do it in the capacity I used to be able to. But I can't . The Yes Syndrome is the hardest for me. I have to learn to tell them what I can do, within my limits. It is the only way.
So the start of the school year, the end of summer is very hard on me, and I believe on all the other people with chronic pain, or chronic illness. I find it very hard to deal with, since I am a fighter. the only issue is I fought so long, that I am in severe pain all the time now. I fought against the pain, pushed myself no matter what pain I had, that my body was shutting down to the point I would pass out. I had for so long pushed the pain away, or fought it, the pain was so bad, my body was doing what it had to did to kill the pain. What it did was shut down and I would pass out. Now, I am not passing out as much, but I am feeling the pain. who knows. All I know, is once we get through back to school, all we will have to worry about is that wonderful time of year , CHRISTMAS!!!!! GOOD LUCK!
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Showing posts with label ten on tuesday. Show all posts
Showing posts with label ten on tuesday. Show all posts
Wednesday, August 3, 2011
Tuesday, July 26, 2011
Ten on Tuesday!!!! 7-26-2011
I AM HOT!!! If you have not gotten that with the last post, I guess you have now, and I will say it again, I AM HOT!!!!. The major issue is, most of the medicine I am on, has a small print disclaimer, avoid sun exposure or extended heat. So my best friend is my air conditioner. However, there are times when even that is not enough. What else is there to help you cool down, well of course, today is Ten on Tuesday and here are my top ten ways to help cool down on an extra hot day.
1. Cool Shower--- remember, cool, not cold. Shocking your body is going to do nothing for you other than make it work to get it back up to it's "normal" temperature, so it will end up making you hotter.
2. Ice/cold compresses--- On the back of your neck or your forehead, especially if you tend to get headaches, it will help tremendously.
3. Dip in the pool--- I used to be a fish to water. I love to swim. I would be in the water constantly if I could, however it incredibly wears me out, but man just sitting in the pool, in the shade or under and umbrella is awesome.
4. A hammock under a tree--- Take a nap, read a book, or simply relax. It is awesome.
5. A snow cone--- brings back memories of going to a local open air market with my grandfather as a kid. I always got blue raspberry, always made a mess, but it always helped me cool off. I love it
6. Ice cream--- who does not love ice cream, have it for dinner on a hot day. The kids will think you lost your mind, but once in a while, it is ok, and you know what it is going to help cool everyone off and have fun!!!
7. Run through a hose--- ok, you can walk, or crawl or what ever you need to get through it. But remember as a kid how great it was to run through a hose shower, or get sprayed while mom or dad were washing the car. take a few minutes and throw yourself back in time, recruit your kids or friends and have a blast. Maybe even get your car washed in the process.
8. Drink Cold Water--- I drink all the time, side effect of the diabetes. However, when you are hot, drinking cold water will help cool you down. Make sure you are drinking more than you normally do. When it is hot, keeping yourself hydration is very important, might not keep you cool, but will keep you out of the hospital.
9. Have a cold dinner--- When it is hot, I hate to eat hot food. Here is a couple of ideas I use for dinner. One, a salad, summer is awesome for this. All the fresh veggies at less expensive prices a salad is quick, filling and good for you. Another option, a salad plate. Pick up a couple different salads at your local deli such as macaroni salad, potato salad, ham salad, egg salad, tuna salad, or you can make them yourself. Place 3 lettuce leafs on a plate, use a ice cream scoop and place a scoop of 3 different salads on each lettuce leaf and slice some tomatoes and serve on the plate with crackers.
10. Soak your feet in peppermint water. Mint is cooling and soothing. Your feet can really help regulate your body temperature. Place cool water in a old dish pan or container big enough for your feet, add a few drops of peppermint oil and relax.
There are many people that would say there are other ways to cool down. I can also think of many others, but since I am limited in my ability to do a lot of things that are taxing on the body, I have to do the easy stuff. Now if I was not dealing with the fibro and hemicrania continua I would definitely do some of the following:
1. Waterpark
2. Water Skiing
3 Swim in the Ocean
4. Tubing
5. Kayaking
I am sure I am missing some stuff, but you get the idea.
What do you do to stay cool?
What summer food brings back childhood memories?
Well, I hope you can find something to help cool you off. Take it easy and take care of yourself. Until the next time, Gentle hugs.
1. Cool Shower--- remember, cool, not cold. Shocking your body is going to do nothing for you other than make it work to get it back up to it's "normal" temperature, so it will end up making you hotter.
2. Ice/cold compresses--- On the back of your neck or your forehead, especially if you tend to get headaches, it will help tremendously.
3. Dip in the pool--- I used to be a fish to water. I love to swim. I would be in the water constantly if I could, however it incredibly wears me out, but man just sitting in the pool, in the shade or under and umbrella is awesome.
4. A hammock under a tree--- Take a nap, read a book, or simply relax. It is awesome.
5. A snow cone--- brings back memories of going to a local open air market with my grandfather as a kid. I always got blue raspberry, always made a mess, but it always helped me cool off. I love it
6. Ice cream--- who does not love ice cream, have it for dinner on a hot day. The kids will think you lost your mind, but once in a while, it is ok, and you know what it is going to help cool everyone off and have fun!!!
7. Run through a hose--- ok, you can walk, or crawl or what ever you need to get through it. But remember as a kid how great it was to run through a hose shower, or get sprayed while mom or dad were washing the car. take a few minutes and throw yourself back in time, recruit your kids or friends and have a blast. Maybe even get your car washed in the process.
8. Drink Cold Water--- I drink all the time, side effect of the diabetes. However, when you are hot, drinking cold water will help cool you down. Make sure you are drinking more than you normally do. When it is hot, keeping yourself hydration is very important, might not keep you cool, but will keep you out of the hospital.
9. Have a cold dinner--- When it is hot, I hate to eat hot food. Here is a couple of ideas I use for dinner. One, a salad, summer is awesome for this. All the fresh veggies at less expensive prices a salad is quick, filling and good for you. Another option, a salad plate. Pick up a couple different salads at your local deli such as macaroni salad, potato salad, ham salad, egg salad, tuna salad, or you can make them yourself. Place 3 lettuce leafs on a plate, use a ice cream scoop and place a scoop of 3 different salads on each lettuce leaf and slice some tomatoes and serve on the plate with crackers.
10. Soak your feet in peppermint water. Mint is cooling and soothing. Your feet can really help regulate your body temperature. Place cool water in a old dish pan or container big enough for your feet, add a few drops of peppermint oil and relax.
There are many people that would say there are other ways to cool down. I can also think of many others, but since I am limited in my ability to do a lot of things that are taxing on the body, I have to do the easy stuff. Now if I was not dealing with the fibro and hemicrania continua I would definitely do some of the following:
1. Waterpark
2. Water Skiing
3 Swim in the Ocean
4. Tubing
5. Kayaking
I am sure I am missing some stuff, but you get the idea.
What do you do to stay cool?
What summer food brings back childhood memories?
Well, I hope you can find something to help cool you off. Take it easy and take care of yourself. Until the next time, Gentle hugs.
Tuesday, July 19, 2011
Ten on Tuesday 7-19-2011
What would be the exciting thing to talk about today on the Ten on Tuesday. I was thinking about the ten things I miss doing the most since I have hit rock bottom with my fibro, but, that , is
just sad. I still do all I can and have to concentrate on that, right!!! So I decided it was going to have to be a little bit more upbeat. Then I thought, how upbeat can being stuck in bed be, and yes, lately, I have had alot more stuck in bed time, then get up and go time. So here it is. When I am stuck in bed, what are my ten go to things to keep me busy, and these are the answers.
1. Facebook----my outlet to the real world. This is my connectivity to all that is going on with my friends and family. I have to tell you though, you must be careful Do not let it drag you into the drama that some people use it for. That will only add stress to you that you don't need.
2. Twitter--- I have found an amazing group of people on twitter, my fellow #spoonies, that I tweet with, ask questions of, reply to, and simply learn from.
3. Lifetime Movies----yes, you have to love them. On the weekend, when I am stuck, you can find me watching this channel, hour after hour and always being engrossed into the story line of the shows. If you have not participated in this, please make sure you do so, you won't regret it.
4. Reading---I love to read, and will as long as my eyes and hands cooperate, do this whenever I can. I sometimes have issues with holding the books, and other times, my vision. so this is not done as often as I would like, but i keep trying.
5. Law and Order---- Ok, I am addicted, I love it. I have to say, the old name sake and SVU are the ones I will watch, no matter how many times I have seen them, over and over again. The Law and Order marathon's on the USA channels are tops with me.
6. Criminal Minds--- Never watched this show when it first aired, but when I started having to be in bed and needed something to do, I got hooked. It is an amazing show, and how bad is it to watch Shemar Moore, really!
7. Sleep--- We all know any time we can get extra sleep, we should do it. So if I fall asleep, well, so be it.
8. Phone--- If you have read my blog before you know I live about 3 hours away from from my family and friends. I usually talk on my phone with someone in my family back home at least a couple of times a week. I would do it more often, but since my sleep schedule is so backwards from everyone else's we usually connect with facebook or text messages better. I miss them a whole lot.
9. My Blog--- you would not know it recently, but I try and do something with my blog as often as I can. Again, it is one of those things that has to be done if I have no headache, my eyes don't hurt and my pain levels, especially in my hands and arms are not real high. I know you all understand how hard it is to type and work on a computer when things are not feeling the best.
10. My Zazzle Store--- www.zazzle.com/designsbythesea I make things on my store when I am bored. I use it to make a few dollars occasionally to help out the family. Well, like I said a very few dollars. lol. It is still fun, It also lets me make items for awareness and support of those suffering from fibromyalgia.
Well, there is the Ten on Tuesday for this week. What are the things you do when you are stuck in your bed or on the couch? What keeps you sane? Please let us know and share with the rest of us. The only way to help each other is to talk about what we go through.
just sad. I still do all I can and have to concentrate on that, right!!! So I decided it was going to have to be a little bit more upbeat. Then I thought, how upbeat can being stuck in bed be, and yes, lately, I have had alot more stuck in bed time, then get up and go time. So here it is. When I am stuck in bed, what are my ten go to things to keep me busy, and these are the answers.
1. Facebook----my outlet to the real world. This is my connectivity to all that is going on with my friends and family. I have to tell you though, you must be careful Do not let it drag you into the drama that some people use it for. That will only add stress to you that you don't need.
2. Twitter--- I have found an amazing group of people on twitter, my fellow #spoonies, that I tweet with, ask questions of, reply to, and simply learn from.
3. Lifetime Movies----yes, you have to love them. On the weekend, when I am stuck, you can find me watching this channel, hour after hour and always being engrossed into the story line of the shows. If you have not participated in this, please make sure you do so, you won't regret it.
4. Reading---I love to read, and will as long as my eyes and hands cooperate, do this whenever I can. I sometimes have issues with holding the books, and other times, my vision. so this is not done as often as I would like, but i keep trying.
5. Law and Order---- Ok, I am addicted, I love it. I have to say, the old name sake and SVU are the ones I will watch, no matter how many times I have seen them, over and over again. The Law and Order marathon's on the USA channels are tops with me.
6. Criminal Minds--- Never watched this show when it first aired, but when I started having to be in bed and needed something to do, I got hooked. It is an amazing show, and how bad is it to watch Shemar Moore, really!
7. Sleep--- We all know any time we can get extra sleep, we should do it. So if I fall asleep, well, so be it.
8. Phone--- If you have read my blog before you know I live about 3 hours away from from my family and friends. I usually talk on my phone with someone in my family back home at least a couple of times a week. I would do it more often, but since my sleep schedule is so backwards from everyone else's we usually connect with facebook or text messages better. I miss them a whole lot.
9. My Blog--- you would not know it recently, but I try and do something with my blog as often as I can. Again, it is one of those things that has to be done if I have no headache, my eyes don't hurt and my pain levels, especially in my hands and arms are not real high. I know you all understand how hard it is to type and work on a computer when things are not feeling the best.
10. My Zazzle Store--- www.zazzle.com/designsbythesea I make things on my store when I am bored. I use it to make a few dollars occasionally to help out the family. Well, like I said a very few dollars. lol. It is still fun, It also lets me make items for awareness and support of those suffering from fibromyalgia.
Well, there is the Ten on Tuesday for this week. What are the things you do when you are stuck in your bed or on the couch? What keeps you sane? Please let us know and share with the rest of us. The only way to help each other is to talk about what we go through.
Wednesday, July 6, 2011
Ten on Tuesday!!!! 7-5-2011
Ok, I am running just a few minutes late on getting this on the page, but I am still going to do it. I am still having a bit of a crazy time with all the medicine changes and the headaches/migraines have been out of control since the doctor has decided to now take away the new medicine and not replace it. So let me tell you it has been quite a crazy couple of weeks. Throw in there, the July 4th holiday and visitors at my house from out of town for the last 13 days straight, I am totally wiped out and in need of a massive break. Don't get me wrong, I loved having friends here, and can't wait til more get here, but we all know, with the exhaustion and pain, you wear out easy and extra people, simply means extra exhaustion. So today, I have decided to try and make it simple. I am going to simply show you 10 pictures of my favorite people, that have visited me so far this year!!!
1. My GRANDSON , oh yeah and my son
2. My nieces and nephew
3. My Cousin and her family
10. Dan and his family. I have known Dan since 4th grade. Pretty funny huh!
1. My GRANDSON , oh yeah and my son
2. My nieces and nephew
3. My Cousin and her family
this is an older picture, not while they were at my house, but they were not all down at the same time, so I wanted a group picture of them, lol.
4. My son Donovan's friends Jesse and Christian, both are just like another one of my kids!
5. Will and Mandy, Shaun and Helena
my adopted kids.....
6. Ronnie and Damien Finch
friends of my boys from way back!
7. Denise Zimmerman and Friends ( Denise is coming down with her kids in less than a week, I can't wait)
8. My Parents! Ok now this is scary, but this picture is of my parents at my wedding almost 16 years ago. It is the only one I have. They hate having their picture taken, lol.
9. My brother-in-law, his girlfriend and my niece and nephew.
10. Dan and his family. I have known Dan since 4th grade. Pretty funny huh!
Well, that is the top 10, or first 10 visitors to my new house here at the Beach. I am excited about having more visitors. The summer is getting booked. It is nice to be able to have people come down and for the most part, they are awesome about my ability or inability to do things. I simply tell them use what ever you want and clean up after yourself, lol. It is cheaper for them, and I get to see people I miss very much!
Just a side note, friends still to come!!!
Holly and family.....I started working with Holly at the 911 center about 10 years ago. I was talking about my husband's sick uncle one day and she overheard. His nickname was Uncle Fuzz. She found it quite strange because her half brothers and sisters had a sick uncle as well, they called him Uncle Fuzz. Turns out, her half siblings were my husbands cousins, very small world!!!! Now we are the best friends, and well in a strange sort of way, family!!!
Linda and family, Linda was my best friend in kindergarten and all through elementary school and on through school. She lived right around the corner from me, up until she got married. So let me see, friends for 35 years in September. Pretty Darn amazing.
Well, I am sure there will be more, but for now, this is the list. Christian will be coming back, as well as my son and grandson. Will, Mandy, Shaun and Helena also want to come again, hopefully Helena will know then if the baby she is carrying will be a boy or a girl, then I can go shopping! I know my cousin will be back and hope my mom and dad get down. Well, such is life at a beach house I guess. It sure could be a whole lot worse. I try and remember that when my pain levels are high and I hurt a whole lot. I just try and remember, it is good that I am in pain, I know I am alive!!! Gentle hugs to all.
Tuesday, June 28, 2011
Ten on Tuesday!!!!! 6-28-2011
Ok, so I really wanted to get some cool Red, White and Blue recipes together for my ten on Tuesday since July 4th is quickly approaching but today is not a great day for me. Headaches are bad and just not feeling that great. Instead I am going to do a quick list of my favorite books to read or make that Authors. I do a lot of reading so books become my get away. I don't mean books about illnesses or the crap I go through every day, I have to deal with that, this is something I do to not think of that. Books I use to help me day dream or take my mind off of the pain and daily grind.
1. Nora Roberts
2. James Patterson
3. Stephenie Meyer
4. Catherine Coulter
5. Anne Rice
6. Richelle Mead
7. Dan Brown
8. Mary Higgins Clark
9. Sandra Brown
10.Katherine Stone
These are some of the authors I have read numberous books from. Of course there are many others. I am sorry for cutting it short, but hopefully in the next day or two I will get to add some fun recipes for July 4th. I hope you have a good night.
1. Nora Roberts
2. James Patterson
3. Stephenie Meyer
4. Catherine Coulter
5. Anne Rice
6. Richelle Mead
7. Dan Brown
8. Mary Higgins Clark
9. Sandra Brown
10.Katherine Stone
These are some of the authors I have read numberous books from. Of course there are many others. I am sorry for cutting it short, but hopefully in the next day or two I will get to add some fun recipes for July 4th. I hope you have a good night.
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